THE BLOG ABOUT NOTHING

I had my 6 month check up today. All clear, no present danger. If you are just coming out of chemo, trust me, you will get you back. It may not be the old you but hey, beggars can't be choosers.

At 6 months my hair is very thick. My Oncologist remarked that she doesn't know anyone whose hair has come back so thick. This would be amazing if it wasn't so curly. I have a full Jew-Fro. I look like George's girlfriend who looked like Seinfeld. Here, see for yourselves:

HOUSTON: WE HAVE HAIR

I'm one week short of 3 months post Chemo and I can finally see some real hair growth progress. Unfortunately the hair growth is not limited to my head. My leg hairs, nose hairs and down-there-hairs have all begun to grow. It's like spring on my body. I might just sprout some Magnolias under my armpits. I have to admit not shaving, waxing, tweezing, lazering was the best part of Chemo. Now, if scientists could somehow harness the power of Chemo to just to the areas of hair we don't want, they'd find a cure for Cancer.

My wig still sits in my closet, never once worn, all forlorn. I'm not not a wig girl. I wear scarves when in company and go Godiva when I'm not. I'm so sick of these scarves. Nothing says Cancer Victim quite like a head scarf. I'm so weary of being blatantly stared at. I'm tired of that sad look people throw my way, the one that says "Poor you". And then I have to give them a wry, half smile to reassure them I don't mind their invasion, when all I want to do is give them the finger. Children are the worst transgressors. They have no shame. I was once in an elevator on the ground floor with my then 4-yr-old when an obese man stepped in and pushed 18. Floors 1 to 5 I was praying: "Please, please, please, please don't say anything." Floor 5: "Mommy why is that person so fat?". Floor 6: "Mommy why did you pinch me?". Floor 7 to 18 red-faced, please-let-me-disappear silence. To that man, I am deeply sorry. I know what it feels like to look different, to be starred at, pointed at. I know even though it's often children who are just being children, it still hurts like crap. And crushes. And makes you stay home rather than go out anywhere. 

When you are going through Chemo you really don't care. You are in a fight and all that matters is getting through. When you're coming out of the exhaustion and the draining psychological and physical 100 pound dumbbells on your shoulders are lifting, you suddenly care about how you look. So you check your head every day for new hairs, you count your eyelashes and scrutinize your eyebrows. They say a watched head never grows but I'm seeing progress. 

I went back to gym yesterday. Another milestone. I walked for 30 minutes at a snail's granddad's pace and thought I was going to faint. But I did it. And I'll go back today. For those just starting Chemo know this: you will get your life back. It doesn't happen overnight. It doesn't happen 3 months later. But it will happen. At least that's what I keep telling myself. 


For those who read this blog often or have followed it throughout, I have a feeling I might have repeated some of what I've just written. It's like deja write. But my chemo brain is worse than ever.   I was at Target yesterday and found myself staring at baby shampoo for 20 minutes wondering:"Why?". I still don't know. 

DONE

Apologies. I know I should have updated this blog sooner. As my dear friend Duckie pointed out my readers need a happy ending. You absolutely do. You have been wonderful, supportive, caring readers. You've left me messages of hope, encouragement and strength. I've survived this surfing on waves of positive vibes.

Here's the thing. Chemo has short circuited my cerebrum. This is about the 9th time I'm trying to write this. Words are not flowing freely. I mean "I've survived surfing on waves of positive vibes". Who writes that badly? Turns out I do. Me and aging hippies doing that free writing course in Haight-Ashbury.

My chemo fog is bad. Very, very, very bad. (Insert your own adverbial phrase please 'very' is all I can muster.) Please forgive me if my wit is witless, my sarcasm lost on myself and my sense of irony so literal that, unlike Alanis, it's not ironic, don't you think? Where were we? I have no idea.

I'm done with chemo. I had my last round just under 2 weeks ago. The usual side effects, plus some lovely new ones: My feet are constantly freezing cold, my finger nails look like crinkly potato chips and my skin has gone so thin that my temporary breasts have shifted to almost under my armpits. Attractive right?

But I'm done. So from here on I can focus on recovery and move on. I still have one more operation where they'll replace the afore mentioned underarm boils with Grade-A, Hollywood tittys. I'll also be on Tamoxifen for at least 5 years. Side effects include night sweats, hot flushes and mood swings. So it's essentially menopause. Great. 

I'm moving from cancer victim to cancer survivor. And that, my lovely, loyal readers, is the Happy Ending. I'm riding into the sunset with my bald head slathered in SPF100. Yeeeha.

DONE

I will be updating the blog from time to time to let you know how I'm doing and to post pictures of my slow growing hair.  

FALLEN EYEBROWS.

Vanity is a strange beast. Here I am with no hair on my head, pus-oozing sores on my chest, red smudges on my face and a recently developed tremor in my right hand (which makes me the cocktail shaker du jour) and the only thing I care about is my eyebrows.

I'm nothing without my eyebrows. They are perfectly thick, dark, round, clown brows. I do not pluck. My eyebrows are what other woman want. And I say this with truthful conceit. I know it because it was drummed into me by perfect strangers my whole life. And now they're falling off. My physical self-esteem dropping follicle by follicle at a rapid rate. 

And, on top of that, my long eyelashes are going faster than donuts at a Weight Watchers convention. Luckily I have lots. Of eyebrow and eyelashes. So I'm hoping I don't lose them all. My grandmother used to collect her fallen hair and use it for buns. They did that in the old days. War mentality. I am considering collecting mine and supergluing them onto my skin. Trouble is a slip of the hand and I'm Frida Kahlo. 

A quick, unscientific survey on Google (despite my doctors, nurses and mother telling me not to ever Google any of my symptoms for exactly the reasons I'm about to unleash) uncovered some women who were 6 months post Chemo and still eyebrowless. Even worse, I found a group of women whose hair, eyebrows and lashes never grew back. And they all pointed fingers at one of the Chemo drugs I'm using: Taxotere. 

Now I know that getting rid of cancer trumps everything else. But sometimes you're tested. You're really, really tested. I mean what if I just snuck away? Maybe the cancer wouldn't know. I'm told it was a stupid cancer to begin with. A highly aggressive cancer that, by all logic, should have made its way to my lymphs, but was too dumb to figure out how. So maybe if I disguise myself and move it won't find me? And I'll get to keep my eyebrows.

The thing is that I'm a fighter. I've never been the kind of gal to just let things slide. And so, despite the now very real possibility that I'll lose the eyebrows I love, I'm going to carry on with Chemo because I have a list of things I love more: my husband; my kids; my family and my friends. Last night this was cemented in stone for me. The kind the mafia use. We were out at one of our favorite restaurants and there was a group of girls and boys in their prom outfits. They all looked like movie stars. I want to see my girls in their prom outfits. I want to spend ridiculous amounts of money on their dresses, hair and make-up. I want to see the boy who picks up my daughter in a Prius Limo and comes face to face with my 6ft8 giant of a husband laying down the law. The kind the mafia use. 

Ultimately you don't fight cancer not to die, you fight for the memories you deserve to have when you eventually do. 

Eyebrow bald spots and missing lashes. 

ROUND 2

I had my second round of Chemo last week. It wasn't as bad as before but that's like saying Stalin wasn't as evil as Hitler. Still one has to celebrate the small things. The days following Chemo you do feel like you've gone a few rounds in the ring with Mike Tyson. You're knocked out before the ref counts to 1. But this time I think I got in a small punch of my own. I've bounced back a little quicker and the side effects haven't been all that life-squashing. 

My taste buds seem to be the hardest hit. I simply cannot taste deliciousness or yumminess of any kind. I can taste onion. So that's what I've been eating. Last night I had 3 roasted onions for dinner. My brother tells me onion is good. It  prevents cancer. Smiley face. 

I do have some news. 
When I first started this blog I mentioned that I'd had an Oncotype test. Basically, minus the scientific mumbo jumbo, it tests the chances of your cancer returning and how your cancer will respond to Chemo. When I was first tested my score was low. A mere 10. I chose to do Chemo anyway because my doctors questioned the result. My Oncotype score was retested. And it came back high. 32. Turns out one can have a Sybil of a tumor. A cancer with multiple personality disorder. Luckily she's already on the couch, having therapy with Dr Chemo. 

I'm doing 4 rounds of Chemo. So I am halfway through. Whoop. And nog a pip. I would have celebrated with Champagne and a funny hat but bed, sleep and pain meds seemed a better party. I can sort of make out a hazy light at the end of a long, dark, Annus Horribilis of a tunnel. To those who endure 6 or 8 rounds of this poison. I tip my cancer cap to you all. Respect. 

http://www.breastcancer.org/symptoms/testing/types/oncotype_dx

THE FOGGY FOG. WITH APOLOGIES TO DORA THE EXPLORER.

A friend of mine suggested I write my next blog about what Chemo does to your sex life. After trying a few times I concluded it would be the shortest blog in history. There is nothing to write about. So we're moving on. Sorry Rinkie. 

I have Chemo Fog. A little studied side effect of Chemo that renders your mind stupid. Dumb as, hmm I had something clever to put in here but I forget. Put it this way: If I had to go out to dinner with Paris Hilton, Jessica Simpson and the whole team at Fox News I would be the stupidest person there.

I've twice walked into my laundry room today and completely forgot why I was in there. So obviously Chemo brain does have some merits. But for the most part it's a bit troublesome. I have long periods where I sit and stare at a wall trying to recall what I was meant to be doing. The wall gives no answers. I stare some more. These walls do not speak. If they did they'd tell me where to find my keys/wallet/bag so that I can go out and drive around aimlessly trying to recall where I'm driving to. 

Names are impossible. I write them down in my phone with a detailed description of the person. Husband: Noel. Tall guy 6.8. Makes me coffee in the morning. We share 2 children and a dog.

But where it gets really hard is when I sit down to help my 7yr old with her homework. I have a theory. America is now actively competing with the cleverer nations of the world because somewhere between: Computers help you learn to Computers have Angry Birds, we've lost our standing as one of the world's top 5 clever kid countries. And now they're piling it on to catch up. Well I can't do most of her homework. No, I'm not smarter than a 5th grader, I'm stoopider than a 2nd grader. Last night's homework she had to identity the following: Triangle, quadrilateral, pentagon, hexagon, heptagon, octagon, nonagon and decagon. I knew triangle and octagon, because of Octomom, but the rest I had to google. I blame Chemo Fog. I'm writing to Obama asking that all moms and dads going through Chemo please be excused from homework for the duration. 

It used to be that I could do the 5-things-at-once mom thing. I'm down to one. I can no longer talk, type, make dinner, chat on Whatsapp and pour myself a whisky at the same time. Multi-tasking is a thing of the past. I know what it's like to be a man. 

ALMOST BALD

Joan Rivers is one of my all-time favorite comedians. She has a documentary called: "A piece of work" which highlights just how much work being funny actually is. She works her ass off at funny. Ok, she gets it surgically worked off, but that would be a joke to her. She writes down every single joke she has ever written on a card and catalogs them in an extensive, alphabetized, wit-filled cabinet. P being her largest section. 

I bring this up because it's hard to be funny or make light of a situation that is gut-wrenchingly painful. You have to work at it. 

My wrecking ball to the heart came last night. I was forced to shave down my hair to a near bald becuase it was falling out everywhere: bed; cushions; towels; tables and food. Campbell's Vegetable and Hair soup is not my favorite flavor. Andy Warhol may have missed the ultimate social commentary there, but I digress. 

Knowing this blog is meant to be light-hearted and uplifting I'm choosing to channel Ms. Rivers. She would take one look at my picture and make some wildly uncomfortable, inappropriate joke like: "She looks like she just got liberated from Auschwitz." Oh come on, it's what you're all thinking. Or: "She looks like Justin Bieber age 50."

I really do look like a cancer victim now. Full victim. Not the tough/hot chick with a number 2. And so, when I look into the mirror I have 2 choices: cry or think of a fabulous Ms. Rivers quote: "Kelly (Pickler) shaved her head to fight breast cancer. Britney shaved her head because the Slurpee machine broke. (Just something to think about.)" 

JUST BECAUSE YOU CAN'T SEE THEM, DOESN'T MEAN THEY'RE NOT OUT TO GET YOU

I've always been a bit of a mysophobe. I fear germs. I see them everywhere; like that kid who sees dead people. It's become worse. I no longer go to movie theaters because I know the person behind me is host to Influenzavirus A through C. If I have to use a public bathroom I do it Madonna style. I wash my hands with OCD frequency. 

Having Chemo takes your phobia to a pathological new level. Your immune system is low. You can't fight germs. You can barely insult them. Your little, white blood warriors have met their Waterloo. And so you have to avoid germs like The Plague. Literally. 

The days following my first Chemo infusion I steered clear of all public places. To me restaurants became Bird Flu hubs; Supermarkets were cesspools of Pulmonary Tuberculosis. Even my kids scared the hell out of me. Because let's face it, kids aren't the most hygienic of people. And, even if you could bathe your kids in sanitizer, you know their friends are still having a jolly good nose pick and then playing clapping games with yours. 

Of course you can't put yourself into a plastic bubble. Although, I did buy those face masks you saw on TV during the H1N1 lets-have-fun-with-the-phobic crisis. Sooner or later you have to venture out. Lucky for me there's that Neulasta shot. It actually elevated my white blood count. So now I have more than I need. Way more. There's a partaay in my body and the white blood cells have invited their whole disease-brawling posse. It's like the Jersey Shore in there, a fight a minute. And I'm all for it. I can go out. I can eat food prepared by someone who may or may not be wearing gloves. I can pump gas. I can handle money. Best of all I can kiss my kids and husband good night. 

Unfortunately white blood cells have a short life-cycle. A partying lifestyle will do that to one. So I'm taking advantage of my Superwoman powers while I still have them. And no evil, viral, fungal or bacterial pathogen is going to take that away from me.  

OFF WITH HER HAIR

Women are obsessed with their hair. I think it's fair to make that a statement and not an assumption. A strong statement. Up there with: The earth is round. Men take their hair semi-seriously, sure, but they know, because they've seen it on their grandfathers, fathers, teachers, coaches, sports heroes and movie heroes that they may lose it. Bruce Willis is why men do not stress their hair.

It's different for woman. We see no bald. We see femininity and hair perpetually linked in a knot of perfectly-coifed updo. When woman on the screen shave their hair it's to come across as androgynous and macho (Sigourney Weaver in Alien; Demi Moore in G.I. Jane) or it's to shed them of every ounce of their femininity and person (a bawling Anne Hathaway in Les Miserables; every hysterical America's Next Top Model girl chosen to receive the buzz chop). Long, flowing, Botticelli locks are THE definitive beauty standard for women. It therefore comes as no surprise to me that some women opt out of Chemo because they fear losing their hair. It's that important to us. 

This brings me to my recent buzz cut. In order to have your wig fitted properly you have to have your hair short enough. Half an inch to be exact. I did it a few days ago. Did I crumble? Did I lay down and die? Oh no not I. Break into massive musical song and dance hair-shearing number. Fade back to blog. I survived. I didn't shed a tear. And when all was said and shorn; I really like my shaved head. I feel tough. I feel cool. I turn up JZ in my Volvo and peace-up sideways to my homegirls in carpool. This mama's got swagger. Whatever that means. 

Of course I'm going to lose the little I have now. It's already started to come out when I towel dry my scalp. Chemo's not letting me off that easy. But when that happens I have a long, flowing, gently-highlighted, thoroughly feminine, JAP wig to don. But that is another blog.  

I'D RATHER BE WATERBOARDED

It's been 5 days since I had my first Chemo infusion. It has not been pretty. Mostly I'm exhausted. I'm really too tired to be typing this. I'm taking long breaks between each sentence for some water and a pep talk from my coach. Then back into the ring, 3 words, Gatorade, rest. 

I have many side effects. But, I shall spare you the long list and cut to the gross bits. Blatant sensationalism I know, but a gal's got to lure her audience in somehow. And, since there is absolutely zero sex happening now, I'm going for blood, violence and pain. 

Eew factor numero uno:

I have blisters in and around my nose. All over. My nose is a dot-to-dot abscess puzzle. Connect them all and you'll have a cankerous, white-headed Miro. If I have to blow my nose, it gets Tarantino bloody. Chemo literally punches you in the face. 

Eew de 2 (Coming soon to a perfume counter near you.) 

My entire neck and chest area is covered in a throbbing, itchy, red rash. It works much as America does. The areas that are blue are calm. But the red spots are unbelievably irritating and menacing. And, they won't go away. I've tried appeasing them by buttering them up with soothing lotion and promising it'll get better this time around. But they don't believe me. They're swollen, angry, demanding all my attention and insisting the other 47% of my body should not share the cream. It's a hard itch to scratch. 

Eew 3 

This one's really for Adam Sandler fans. POOP. If you're not laughing hysterically and making fart noises with your armpit, this Blog has ended for you. Thanks for reading. For the rest of you, and my nephew, I shall continue. I had not pooped in 5 days. Yesterday was my first one. And it was a tiny, pathetic, Cadbury's Whisper of a poop. No, Dr Freud, I am not holding onto my poop like gold. I've long since gotten over those issues. I would simply love a relaxing, free-flowing, zero-pushing guano. Isn't that what everyone wants? 

I'm tiring fast. It's time for a quick nap before my Neulasta (medicine to stimulate healthy, white blood cells and fight infection) starts drilling at my bones with a pneumatic jackhammer. Can't wait to see what next week brings. 

CHEMO IS NO PICNIC.

I had my first day of Chemo yesterday. I don't know why I expected it to be a walk in the park. I think that I had read up so much that I had myself scheduled for IT to hit on day 3 and gradually reduce by day 10, then I would be fine until the next infusion. I even packed a frikkin picnic basket for the day. Such was the extent of my delusion. I was there from 8.30am and last to leave at 6pm. Halfway through the first lot of Chemo drugs I developed an allergic reaction. Watering, sore, red eyes and elevated heart rate. They had to stop the Chemo, give me antihistamines and even more steroids, wait until I was ok and continue on. I developed a chalk-like taste in my mouth and was not hungry in the slightest. My husband and mom throughly enjoyed the picnic lunch. Once home I went straight to sleep and have felt nauseous, crappy and exhausted ever since. On a better day I'll describe the big social scene Thursdays at the Chemo ward are and how loudly Southern families like to talk about their pie and dogs. But not today. Today Chemo is the clear winner. 

EXIT THROUGH THE PINK RIBBON GIFT STORE

Yesterday my mother and I went on a tour of the Cancer Ward. Our guide was a nurse, dressed in the appropriate nurse tour-guide outfit: scrubs. I must say as far as tours go, I've had worse. She politely pointed out all the major attractions and points of interest. "This is the pharmacy." Aaah yes, never would have guessed had it not been for the big sign across the window that says PHARMACY. "This is the waiting room." Take a picture Mum. "Would you like a glass of water?" Hear that Mum? We get a free glass of water. Only gripe is the plastic glass does not have any pink ribbon promotional branding and thus cannot be used as a gift. 

Then the fun part of the tour ended. We were ushered into a small room for Chemo 101. Basically Chemo 101 is an hour-long, 4D, interactive experience that will scare the shit out of you. You're given page after page, brochure after brochure of really, really, asteroid is hitting in 10 minutes bad news. Firstly she tells you which Chemo drugs you're getting. I'm getting a lovely cocktail of Taxotere and Cytoxan with some Neulasta as garnish because they can't stick a cocktail umbrella into your Chemo port. Nurse Psychopath then explains all the side effects. I will lose my hair, be fatigued, have nausea and vomiting, poor appetite and/or weight gain. I may have swelling, mouth sores, constipation, diarrhea, black poop, red wee, nail fallout, anemia, Chemo fog, infection, bleeding, pain and blood clots. I am to avoid crowded places, spicy food and my weekly pedicure. But you know what I won't have...Cancer. 

Shell-shocked we're taken to the main part of the tour. The actual Chemo ward. "This is where the magic happens" smiles Nurse Gladitsnotme. Okay she didn't really say that, but you could tell she's been dying to. She points out The Chair by Lazy Boy. The IV Pole by Big Medical Business, The Visitor Chair by Chemo Rooms To Go and the Fluffy Sock by unknown artist. Fascinating. 

Our tour ends with Nurse Sunshine bidding us farewell. "Comeback soon y'all." Yes we'll be back. Thursday to be precise. But only because our camera phone dies and we really, truly want a shot of The Fluffy Sock.